Foreword, Introduction and Basic Information How to use the guidelines The guidelines Clinical course Mental retardation Genetics Girls with Duchenne dystrophy Pathogenesis Therapeutic research Aim: best possible state

Medical and Social Management of Boys with Duchenne Muscular Dystrophy Family doctor Weight control Risks of anaesthesia Individual treatment

Stage I   None or Very Slight Clinical Symptoms   Age up to about 3 Years Clinical diagnosis Molecular diagnosis Final diagnosis Genetic counseling Responsibility for mutations Prenatal diagnosis Continued consultations

Stage II   Slight Muscle Weakness and Beginning Restrictions of Movement   Age about 3 to 6 Years Maintenance of muscle power Physiotherapy Night splints Early orthopaedic intervention Steroid treatment Kindergarten

Stage III   Increasing Muscle Weakness and Contractures   Age about 6-10 Years Physiotherapy Orthopaedic measures School Psychological counseling

Stage IV   Reduced Walking Ability   Age about 10-14 Years Operative Measures Control examinations Prevention of respiratory problems Cardiomyopathy Dental problems

Stage V   Adolescent Stage   Age about 12 to 18 Years The wheelchair Physiotherapy Respiratory management Tracheostomy ventilation Assisted coughing Operative correction of scoliosis School and professional training Psychological counseling

Stage VI   Adult Stage   Age more than about 18 Years Specific problems The young men are adults School, education, professional life Sexuality

Conclusion and Outlook

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